Speaker Mr Alastair Kent
For almost 25 years, Alastair Kent was the Executive Director of Genetic Alliance UK – a UK alliance of over 200 patient support groups for patients and families with rare and genetic disorders. In that capacity he was actively engaged in developing policy and practice in biomedical research and service development that would reflect and respect the needs and expectations of patients and families affected by serious, chronic and life-limiting diseases; these diseases could be rare, genetic or arising from a combination of both those factors.
Alastair worked at a national, European and international level to ensure the voice of patients and families was heard, and acted on, in situations where decisions were taken and plans were made.
Alastair was made OBE for services to healthcare in 2011 and elected as a Fellow of the Royal Society of Arts in 2017. Since retiring from Genetic Alliance UK, he has continued to work on behalf of patients and families